DIPG Treatments & More

I'm extremely shaken over Ella's passing, and needed to do something constructive.

It is a common misconception that there is nothing that can be done for a DIPG patient, and it is simply not true. Here are some treatments out there for DIPG patients*-

~Chemo & Radiation can prolong the life of a child with DIPG and to an extent, shrink the tumor
~Antineoplaston treatment @ the Burzynski Clinic in TX
http://www.burzynskiclinic.com/ - http://clinicaltrials.gov/ct2/show/NCT00003458?term=antineoplaston&rank=12 - 6 DIPG children have been confirmed cancer free for at least 5 years
~Envita
http://envita.com/ - In many DIPG patients, envita improved quality of life and extended their lives
~Nimotuzumab
http://clinicaltrials.gov/ct2/show/NCT00600054?term=NCT00600054&rank=1 - http://clinicaltrials.gov/ct2/show/NCT00600054?term=diffuse+AND+pontine+glioma&rank=1

To my understanding, antineoplaston treatment & envita are not covered by any insurance companies, though they seem to be getting results and have very minimal side effects

*Please note that I cannot guarantee the accuracy (or lack there of) listed here.