DIPG Treatments & More

I'm extremely shaken over Ella's passing, and needed to do something constructive.

It is a common misconception that there is nothing that can be done for a DIPG patient, and it is simply not true. Here are some treatments out there for DIPG patients*-

~Chemo & Radiation can prolong the life of a child with DIPG and to an extent, shrink the tumor
~Antineoplaston treatment @ the Burzynski Clinic in TX
http://www.burzynskiclinic.com/ - http://clinicaltrials.gov/ct2/show/NCT00003458?term=antineoplaston&rank=12 - 6 DIPG children have been confirmed cancer free for at least 5 years
~Envita
http://envita.com/ - In many DIPG patients, envita improved quality of life and extended their lives
~Nimotuzumab
http://clinicaltrials.gov/ct2/show/NCT00600054?term=NCT00600054&rank=1 - http://clinicaltrials.gov/ct2/show/NCT00600054?term=diffuse+AND+pontine+glioma&rank=1

To my understanding, antineoplaston treatment & envita are not covered by any insurance companies, though they seem to be getting results and have very minimal side effects

*Please note that I cannot guarantee the accuracy (or lack there of) listed here.

I'm shocked...so shocked....

This is so inhuman, so sickening...not for the fainthearted--- it will make your life look completely perfect when compared to the lives of these precious, innocent people.

CLICK HERE to WATCH

"Serbia's horrific institutions a relic of the past
Mentally disabled kids, adults given no hope for recovery, poor treatment
By Ann Curry

NBC News
updated 7:18 p.m. MT, Fri., Aug. 29, 2008

BELGRADE, Serbia - A generation ago, mentally disabled people were often quietly sent away to bleak government institutions, left to live out their days on the isolated fringes of society
But the scenes you are watching are not from that era, they're playing out now, day after day, halfway across the world.
Children and adults given up by their families. Languishing behind crumbling walls and rusted bars.

CLICK HERE to WATCH

Passed into law today (DS Awareness)...

Thank you for letting me know this...I am so happy to hear about this new law!

This is a must read from a fellow blogger, Embracing Life as Household 6

Click Here to read!

Lots of love,
Alex