Calling All Prayer Warriors!

Baby Stellan, aka "MckMuffin", aka "MckMiracle", has been taken to the E.R. after a recent illness quickly progressed until he was turning blue.

On Tuesday morning, Dennis Reed was taken to the E.R. by ambulance, bleeding profusely from his mouth, losing five or six large clots, on top of an on-going fever. All the kids pulled together when they heard Christine shout, "Call 911!", and four hours later Dennis was released home. While Dennis was at the hospital, a neighbor came over and cleaned the pools of blood for the family and watched the kids. Dennis was very clingy after coming home, and continued to loose clots from his incision site. On Friday he had his palette checked by the surgeon, who said it was not infected, but put him on antibiotics just in case. They found out that Dennis had only lost half a pound since his surgery. There was an extra flap of tissue, though, that may need to be removed in a future surgery.

On Friday, CDH baby Olivia's sats droped to the 40s and her heart rate went down significantly. She was first extubated and then re-intubated with a larger tube. After that they bagged her which did not work, then moved her back to the oscillatory vent which inflates and holds the lungs open, which did not work either. Then a drainage tube was inserted into her lungs, and they got quite a lot of fluid out. Finally she started to respond, but with her oxygen being so low for so long, it's very likely it caused damage to the brain, but how much they can not yet tell.

Baby Kayleigh, CDH warrior's parents were recently told Kayleigh's time on earth was coming to an end. But Kayleigh decided otherwise. They now have a plan of action, but it's certainly not going to be an easy road, nor one with a guaranteed survival. Please keep this PICU Princess in your prayers!

On the 17th, CDH & Situs Inversus (Heterotaxi) warrior Veiyah had her worst episode yet. The nurse came in to do her blood draw and Veiyah got so upset that her oxygen saturation went down to below 50 (normally for her, should be 70's and up) and her heart rate dropped from 130 bpm to 30 (thirty) bpm. The nurse started to balloon air into her breathing tube, but when her heart continued to slow, chest compressions had to be started as well. A minute later she still wasn't improving, and the nurse called for help, and everyone ran in and attempted to revive her, while her mother yelled for her baby girl to come back, to not leave her, too, like Veiyah's twin sister Aderah did while still in the womb. Finally she calmed down, and her sats rose. Miraculously, just one day later, Veiyah was able to be extubated. And though she was still in the PICU on Christmas, that is fine for Veiyah's family. After all, Veiyah is alive and fighting, and that is the best present they could have asked for.

8 year old Eden Adams has been battling Stage IV Neuroblastoma for four years, and as of right now, it is no longer a matter of how to beat the cancer, it is a matter of keeping her as comfortable as possible, and praying. Praying for Eden, whatever the outcome may be- whether a life saving miracle, whether a peaceful passing...Princess Eden needs all the prayers she could get!

Okay, I'm sure I'm forgetting a few kids, but this should keep you busy for a bit!

~Alex

Getting some poetry off my chest

I've had these poems running though my head, and it's time I write them down!

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Baby, hold on to your smile,
I know you're tired
But hold on to your smile
I know it's been awhile
Since things felt okay
And it's hard every day,
But hold on to your smile

'Cause it's no fun being sad,
Not fun being mad,
Even though things are bad,
Hold on to your smile

It hurts to see you hurting

You don't have to be strong
Like you've been all along
It's okay to cry
I bet you've wondered some why's
And I'd be angry, too
If I were you,
But we want you to be happy
We'd do anything
...Oh, baby... please...

Just hold on to your smile

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How can you go along
When they're just hanging on
How can you sit there
Whilst horrors they bare
How can you know
When they've no where to go
And go along
As they try to be strong

How can you do nothing
While the children are suffering?

Note- In the line "When they've nowhere to go" I'm not referring to a physical shelter, but a refuge so to speak, an escape from what they're going through.

Note Note- When writing the first poem, there were two children I had in mind, both fighting cancer, with extremely grim prognoses. They've been so strong through it all, but now, losing the ability to walk, to play, constantly on pain medications making them lethargic, they're having a hard time holding on to their smiles. Every day has become just another day...a repeat of the same emotional pain, and they've reached the stage that they seem to somehow realize that they're not getting better, and they're just so tired of fighting. I don't want to post these children's names here, but please keep them in your prayers...these are children who are normally happy, goofy kids with a love for life, whose spark has left their eyes...please, please pray they can get it back! To be dying is enough without feeling sad, hopeless, and alone. I can email you their web links if you would like, but I just don't feel right putting their names here.

Note Note Note- Yes, I'm aware that I use bold and italics way too much.

Kayleigh's health is improving!!!

The last time I posted I spoke about a baby girl named Kayleigh. It appeared that she would soon be leaving for heaven, but by a miracle, she is improving and recently opened her eyes for mommy and daddy!

HALLELUJAH!!!!!!

Even when doctors say there's "little hope", they're saying there's humanly little hope, medically little hope....but with God, there is ALWAYS hope!!! God is above "humanly", He is above "medically"...He is the great "I AM"!

Jesus, thank you for this amazing healing! I know there's a long way to go, but WOW! How awesome are you, Lord! Thank you for being Kayleigh's Great I Am, and her family's Great I Am, and for being my Great I Am...and Lord, great you are!

Reece's Rainbow // Pray for Kayleigh // I haven't fogotten you!

This is a double triple post =)

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Pray for Kayleigh!
Kayleigh was born prematurely at one pound. She is now over five pounds, but one struggle after another, it appears her little life is coming to an end. Nothing is impossible with God, but the family is having to prepare for the worst, and in need of prayers, as well as those for little Kayleigh. Click the button below to visit Kayleigh's update blog

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Reece's Rainbow

"Once our eyes are opened, we can't pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act" -Proverbs 24:12



Will you give the gift of a family to an orphan with Down Syndrome?

Reece's Rainbow is a registered 501(c) non-profit ministry helping families to adopt children with Down's syndrome from around the world, where without your help, they will suffer unimaginably and, in most cases, die at a very young age. Please, don't look the other way. I'm not going to tell you to donate all you have, or even a fraction of it- just please, read this, and pass it along. And if you are able, consider a donation; a few dollars can save these children's lives and give them the love they so deserve, and the chance to truly bloom. And yes, all donations are tax deductible!

"For those of you who are new to our ministry, Reece's Rainbow promotes the international adoption of children with Down syndrome. 120 children with Down syndrome and other special needs have found adoptive families in only 2 years!! Donations from private individuals, businesses, and other charitable foundations have made it possible to provide adoption grants for nearly every child, meaning families have had the financial support they need to make a commitment. They have been able to rescue one or more of these precious children from orphanages and mental institutions around the world."


The Angel Tree

"Our Christmas Angel Tree Project is our #1 fundraiser for the year. This is the only time when ALL of our waiting children with Down syndrome are openly visible and eligible for grant donations. By sponsoring a child today, you get to share in the joy of uniting families with very deserving children. The average cost of an international adoption is $25,000, so every penny we are able to raise can literally change the course of a child's life! And remember, 100% of your tax deductible donation goes directly to your sponsored child. Reece's Rainbow covers the cost of Paypal fees, shipping, printing, etc. (donations to our Raising Awareness fund are always welcome to help support these costs.)

With your sponsorship gift of $35 or more (per child), donors will receive a beautiful porcelain ornament, with your sponsored child's photo on the back, to hang on your Christmas Tree! Even if you are not Christian, you can still make a tremendous difference in the life of one or more of these children. If you prefer to NOT have an ornament sent to you, just let us know. The Angel Tree is a very meaningful and personal Christmas gift donation opportunity. We will send the ornament, along with a beautiful gift card, announcing your gift to the intended recipient. These are great gifts for your friends, family, teachers, therapists, etc! International sponsors are welcome as well!

We invite you to browse the profiles of our families who are already home with their children, and those who are in various stages of the international adoption process. We are so excited about the remarkable success this ministry has already enjoyed (120+ children with Down syndrome and other special needs have found their families in only two years), and the MIRACLE that grant donations from this Angel Tree Project will mean for each of these beautiful children!

Please visit our Waiting Christmas Angels Gallery and sponsor one or more of our orphaned children with Down syndrome today!"

Forward this announcement to everyone you know, and share this special opportunity to really make a difference in the life of a child with Down syndrome!

Any questions can be directed to Andrea Roberts at bamaroberts@comcast.net All donations are tax deductible, and 100% of your gift goes to your sponsored child!

God bless each of you this Christmas, whether you are Christian or of another faith. The need transcends faiths, ethnicity, geographic borders. Thank you for your continued advocacy and support for this ministry, and for sharing this opportunity with everyone you know!"


Did You Know

In Central and Eastern European countries alone (this would include Ukraine, Kazakhstan, Romania, etc, but NOT Russia), 1.5 MILLION CHILDREN who have been abandoned by their families for one reason or another and are living in "public care" (that's the nice way to put it). If statistically, 1 out of every 733 live births results in a child with Down syndrome, that means at any given time there are 2,046 children with Down syndrome who need families. THAT'S JUST IN EUROPE!! Some do not survive because of serious medical complications...some do not survive because of lack of medical attention, lack of food, lack of LOVE.

In Russia, there are over 700,000 children waiting for families, meaning at least 955 children with Down syndrome wait, languishing. In ASIA (China, Hong Kong, Korea, India), there are 3,572,000 orphans, with nearly 5000 children with Down syndrome who are unwanted. Many of those children are killed at birth. The "lucky" ones end up in orphanages and foster care situations.

In the United States alone, 137 million people claim to be Christians of some denomination. If only 1% of the Christians in this country adopted just ONE CHILD, 1.37 MILLION CHILDREN from abroad would have loving, Christian families to grow up in. Of those 1.37 million, 1,869 of those children have DOWN SYNDROME.

Typically, children are sent to the mental institutions at the age of 4, so we are in a frantic race against time to earn grant donations and find adoptive families for them before their time runs out. Although they can still be adopted once they are transferred, we work really hard to prevent that from ever happening.
Please be sure to take note of their birth-dates, so you know when they turn four. Pray for them and think of them on these days. When other children are celebrating with parties and presents and looking forward to preschool, these children have no idea the horrors that await them when they turn 4. After an orphan has been sent away to the institution, after they turn about 4, their chances of finding a family decrease exponentially, and most of them will suffer every day, until the day they die. Some of them have already turned four, and by a miracle of God, have not been transferred yet. These children truly are living on borrowed time.. Please help us save these children! Look how many have already been saved, and are living healthy, happy, productive lives with their families!

Your donations can truly mean the difference between life and death for these little ones. The high cost of international adoption is the number one factor that keeps families from committing. Your "gift of a family" makes it possible for adoptive families to rescue these very deserving angels.

Recently many specials have been done involving mental institutions across the globe- headlines such as "modern day concentration camps" have been used to describe the situations, and they're not far off, either. These children have amazing potential. Everyday in America people with Down Syndrome are getting jobs, driving cars, owning homes, having families. These children are human beings, living in conditions people would shudder at if animals were living in them. I've been told that 80% of the children sent to the institution die within the first year of being there. Here are a few links that give a look into a life in an institution, one which these children will face soon if you don't step in and help them.
Bulgaria's Abandoned Children (highly reccomended)
Serbia's Horrific Institutions a Relic of the Past
Warehouses of Neglect
Orphan's "Near Death" in Romania
Neglect of Serbia's Disabled Revealed


Look at These Faces

Is God speaking to you?

Are you the person meant to help one of these children in a way big or small?

Are you meant to be a child's "forever family"?

These are just a few of the 150+ precious children waiting to find their forever family. They're waiting for you.


http://ReecesRainbow.org

If you would like, you can post these banners on your myspace, facebook, blog, or other web page to help raise awareness for Reece's Rainbow. Hey, you could even make it your myspace default image! It's my goal to see one of these buttons on every one of my friends' pages. Are you up for the challenge?


Grab This Button


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Please note that this bulletin message is a compilation of information from the Reece's Rainbow site and other resources. Reece's Rainbow is not responsible for any potential false information/etc. This bulletin has information taken from the Reece's Rainbow site, but is not wholly from Reece's Rainbow, Andrea Roberts, or any affiliates, and being so, is not endorsed by them. Thank you

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I haven't forgotten you!

To my readers, and to whom I am a read-ee, I have not forgotten you! I've not been keeping up with everyone religiously as I once did, but I am still reading. I've found, though, that my blogger experience has been more enjoyable since I've been reading everyone's blogs as I get to it, as I feel like it, no pressure. I love reading all your blogs, trust me, I do, but taking more "me time" has felt really good and helped me enjoy your blogs all the more.
I've also been commenting less. Sorry about that

Looking for a Forever Family

There is a child named Daniel who's family has decided to dissolve the adoption. He is in second grade and has sensory processing issues. You can learn more about Daniel here, and help him find his forever family. Listen to your heart...maybe you are meant to be his mom, or dad...maybe you know someone who is meant to be his family. It may seem crazy, but sometimes God's plan is different than ours!

Please try not to judge Daniel's current family. They most likely are just trying to do what is best for Daniel. I am *NOT* encouraging adoption "disruptions", I am just asking that you do not say or think judgmental things about the family, as only God truly knows the situation.

Thank you, and please help spread the word!

Two Years Ago - A Poem for Mia

Two years ago today
A life was changed
A precious little girl
Entered a new world-
A world of doctors
A world of pain;
Mia's life would ne'er be the same.

For two years ago
She contracted Meningitis,
Which spread to her brain
And caused Encephalitis.

Now warrior Mia
Was in a great fight!
But she never gave up
Not a day, not a night

And though the battle was hard
And the odds were frightening,
With the love of her family
Her health was brightening.

Mia's battle isn't over,
She fights everyday
Against seizures and brain damage
But she'll find a way!

Her smiles light the room
And her sweet, happy ways
Give hope to those who love her
And get them through each day.

Mia has seizures
And she's working on walking
Her eyes speak for her
Though she's not yet talking

A precious princess
Lights up our lives
And constantly makes progress
With her courage and drive

We love you, Mia,
From your head to your toes
Your soft little curls
And your button nose

Two years ago
Your life did change
But we'll fight by your side
Forever and always

Princess Kelsey has Received her Butterfly Wings and Heavenly Tiara

I went to Kelsey's page to send her mom a picture I made. Then I found out she passed away. I guess I'm a bit shocked...I mean, I knew the odds were stacked against her, but she's such a trooper...I just can't believe it.......I'm trying to hold myself together, but it's impossible...I want Kelsey back, playing and happy...I don't want her family to be hurting. I know she's free and happy in heaven with her beautiful butterfly wings, but I know that her family is hurting so badly...not only the devastation of your precious child having these "designer genes" that would rip away what we naturally perceive as a "happy childhood", but to then "lose" your child all together......it's the worst-case-scenario for a human being. I can't imagine the pain. To be left on earth, when your child, the product of your love, goes on to heaven.....

Here is a poem I wrote a while back. You're probably getting tired of it by now, as I've used it a few times on this blog, but this time it really fits...I didn't know it then, but this seems to have been written precisely for Kelsey.

Fly high butterfly
Dance with Jesus in the sky
As every day goes by and by
We ask the Lord why oh why

...Why an angel had to die.

We know that death is not a period,
But a comma in the journey Home
We will see you again someday,
Until then, in Heaven you roam.

{Alexandra Mikaela 2008 All Rights Reserved (seriously)}

"...They had no sudden healing
To think that providence would take a child from his mother while she prays, is appalling...
Who told us we'd be rescued?
What has changed and
Why should we be saved from nightmares
We're asking why this happens to us
Who have died to live, it's unfair...
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive..."
-From "Held", performed by Natalie Grant


Here is the picture I made, dedicated to "Butterfly Princess Kelsey"

(Click image to view full size)

I used a couple of different resources to make it, and in their terms of use it asks that I credit them, so here it is-
-the tiara is from http://scrapbookflair.com
-the wings are by http://flickr.com/audreyjm529 (and then I edited them a lot)
-the flower is from http://flickr.com/matze_ott

Click here to visit Kelsey's page

The aftermath

I'm depressed, and confused, and heartbroken. I keep up with a lot of kids, and every time one passes it hurts. But every once in awhile, one hits me really hard. Ella stole my heart. And the way I found out yesterday made it even worse. I feel like such a complainer, too, because if I'm hurting like this, I can't imagine how much her family is hurting. I thank God that I've never felt that, and hopefully never will, but at the same time I know that even though my pain is much, much less, it is still pain and I have a right to feel it. Fly high princess. You are always loved and will be missed, until that glorious day we are called home.

Please Read this Post!

I think I'm going to lose it.

That is what I haven't already lost!

And I don't mean prednisone weight either!!!

~*8i8*~

Before you go, "argh! stop complaining if you're not going to say why you're losing it" (it's a pet peeve of mine), let me tell you that I will tell you. (???)

This is the third (possibly fourth) straight day of sun-up to sun-down appointments.

And if you're not convinced that that isn't enough to make someone loose their mind, let me tell you more.

This is the third (possibly fourth) straight day of sun-up to sun-down appointments, of which have been appointments for not one, but three people, at least two a day, except for today.

Still not convinced?

The night before the first appointment I had an (maybe a few?) appointment(s) (I think) that I can't even remember because of being so exhausted. My mom can't remember either. We can't remember anything about that day at all except that night! What I remember is falling asleep in the car, waking up to a screaming father, getting into bed, falling asleep again, and sleeping until midnight, waking up after all my dreams changed to the theme of, "OMGosh my feet are burning! I must find a cold tile floor to put them on, and by a snow cone machine to drive on the highway with three senior citizens, and to stick my feet in, and sneakily hop on trains to a place with even colder tile!" I woke up and needless to say, my feet were burning. My entire body was burning for that matter! My mom was freezing, and to me it felt like I was in an oven. My mom also said I was fanning my feet in my sleep. I didn't get back to sleep, well, until, umm, two days later. Ish. I was fully awake for at least two hours after that. I tossed and turned, half asleep, until 10am.
I was out of vicoden except for one pill. My mom had tried for days to get ahold of the doctor to write a new perscription, but she was out. We later found out she was in some sort of testing.
My mom had called the pharmacy to see if she thought it was vicoden withdrawl. They said they were 99% sure it was. My mom gave me half of the remaining vicoden, and I 3/4 slept until noon until I had to wake up for the appointment at 1:30.

I'm just getting started!

The first (possibly second) day I saw a doctor working as 3+ types of doctors (who is also going through exams to make sure she's still on top of her game (she is)), who was shocked to find out everything that was going on, and prescribed new braces, new doctors, and possibly a new PT center. This alone took 4+ hours, not including waiting. We went down to orthopedics and got a plaster cast of my legs, which took an hour+ (without waiting time), picked out colors & a "brace tatoo" for my new braces, and managed to get out of there after dark... it was freezing, and we had no coats, and myself no socks. My feet were completely gray. We went through the drive through at Carls Jr (as all my mom had had to eat previously was a granola bar, and I had only had breakfast) and had a fantastic meal (IT WAS SOOO GOOD!!)

At home when my mom told my father how excited she was about the new doctors and the treatments they can give me, with this being the conversation that followed:
"Wow, so they found out the insurance would cover it all. That's great".
"No they didn't. The vast majority is 'alternative medicine'. You know they don't cover any of that."
"Well than why would you even bring it up to me? Why is it even considered???"
"Because it could greatly increase Alex's life quality! She could be walking again, among the other benefits!"
"But the insurance won't cover it, so why are you even thinking about it?!"
"This is our daughter! This can help her so much, and Alex is all for it!"

"SO I GUESS WE'LL JUST PAY ALL THIS MONEY OUT OF POCKET UNTIL WE'RE LIVING IN A BOX BECAUSE OF HER!!!"

"DON'T SAY THAT! You scare the kids so badly! You know that won't happen, but they have nightmares about it because you say it in front of them all the time! How do you think it makes Alex feel thinking that you believe we'll loose everything because of her?!"
"HOW DO YOU EXPECT US TO PAY IT??? I'M JUST CLARIFYING YOUR PLAN!!"
"You know darn well and good we'll find a way!"
*starts stomping of upstairs to "his" room, slams the door*
*says under breath "Like maybe selling one of your timeshares or taking a few less vacations we all hate!"*


The second (third???) day I saw the worst doctor I've ever seen. This gynacologist walked through the door and insulted my mother. She only was worse from there. She was incorrect on MANY things, and didn't go 5 seconds without intentionally insulting, brow-beating, or bullying my mom or I. We later found out they'd been trying to get rid of her but UNM wouldn't fire her without a formal complaint from a patient. So we will be the one to file it. My mom was actually CRYING by the time we left, and she NEVER cries. She was that HORRIBLE that my mom started watering up and I didn't talk the entire time because I was so AFFRAID and INTIMIDATED by this ROYAL B**** (pardon my french...I am just so upset about now!)!!! We then went to my mom's appointment, only to find they would not take our insurance either (so far they've taken none of our doctors), so after waiting, crying & praying, we left, with no more answers than before, except that because of one selfish cuss word in MI (with motives 100% selfish, who KNEW how sick I was & that my mom was disabled) we are basically without insurance and have had our lives completely turned upside-down and are going through hell trying to figure this out. Not to mention my dad's way of being supportive and helping get through this is screaming at us non-stop (no exageration) about things that are totally HIS FAULT or at least mostly!

Day 3 (maybe 4)- Wake up, get Sam to school, pick up Grandma Lois, and head to my grandma's appointment (at a hospital we're unfamiliar with). It was non-stop chaos all day, but we got through it (and with flying colors all things considered). Just not being at home being screamed at and being in new surroundings (though unfamiliar and confusing) was enough to keep us happy and intertained. Of course it exhausted us all, but it was actually sort of fun...an "adventure". Hopefully the mysterious mass in my grandmother's lung is neither a clot nor tumor, but rather just scar tissue that's formed for some odd reason. For whatever reason she is now requiring oxygen 24/7 instead of just at night.

Grandma is my mom's, my brother's, and my rock. She holds the family together and always lends a helping hand and an ear. We would all be lost without her, and, well... she just can't die right now! She can't!!! We need her and we're so affraid! She doesn't want to die either! She wants to stay and help us, and we need her help! God, please heal my grandma! Please, God, let her live a little while longer! Please...please!


Okay, I'm pulling myself together....

We haven't got to do any school this week, which makes us even more behind. If we can't get everything done and in VERY VERY soon, this entire semester won't count and I'll probably end up held back AGAIN. We don't know what to! I can't be in public school, and we can't keep up with this home school program, and I can't be held back again! I'm so overwhelmed and so upset! WHAT DO I DO???

Okay, I'm going to stop now...I'm totally loosing it...

Please pray for me and my family. Please tell your friends & family to pray for my family. Please put us on your church prayer list if you have one as well. We don't know what to do and we're just so scared. Words can't even describe. We need a huge, amazing, miraculous, devine intervention to get through. I'm so scared...so, so scared...

HOPE-ing for Seven Year Old Ella Hope - DIPG Cancer Warrior

Doctors say there are no options except to keep on praying and hope-ing for 7 year old Ella Hope.
Written by Alexandra Mikaela

Ella was diagnosed with Diffused Intrinsic Pontine Glioma (DIPG) on December 7th, 2007. This specific type of cancerous tumor has taken the lives of many children. This tumor is rare, highly aggressive, highly malignant, and has not once been survived as far as we know. Receiving it means to receive a death sentence. But with this you don't wait 30, 20, 10, or even 2 years to take your last breath; It is known to kill the child in 9-12 months after diagnoses, at best. And, it only takes our children. Mainly children between the ages of 5 and 9. No adults, just our precious, innocent children.

In less than two months, it will be a year since Ella was diagnosed. And yesterday they were told that despite radiation, a trial drug (stopped after first administration due to strong side effects) and chemotherapy, and more, which, praise the Lord, has not stopped this little ball of sunshine from being her happy, "peppy" self. The tumor has grown very significantly, and is a time bomb in her precious little head. But there is a first time for everything, and no one is giving up HOPE for young Ella Hope.

Though they are preparing for the worst, there is always HOPE...even in the case that Ella's earthly life expires, there is HOPE in Jesus Christ, and there is HOPE for a cure for the children who have been diagnosed with this monster and will be in the future. Ella and her family needs your prayers! Pray for COMFORT, PEACE, and a PAIN-FREE TRANSITION if it is meant to be. Whatever you prayer may consist of, please, include Ella and her family in your prayers.

And please, never loose HOPE for a cure for childhood cancer. For someday, you may be looking at an MRI, being told that HOPE is the only chance your child has left.

Click the image below to visit Ella's CaringBridge site, learn more, subscribe to updates, view pictures, learn how you can help (there are multiple ways!), and leave messages of love, care, support & prayer

Prayer Request!!!

I just heard my mom on the phone talking with the new insurance people, and they told her they don't have dental. I know I didn't hear the whole story, but I have many cavities because it is very hard to get to the sink or even just to have time to set everything up in bed, and weak teeth as well...and I'm pretty sure she said they don't have vision coverage either, and today I go in for glasses...with my disease I could possibly go blind and we really need prayers about this new insurance. I'm trying to put my trust in God but I need some help, so please pray for my trust in God, for my health, my appointment today, for my mom to get through this, and for the insurance to work out for God's divine plan!!!

---------EDIT----------

I have just found out my rhuematologist will not be covered whatsoever and he is the only peds one in the state. This is devastating. Last year alone we paid over $13k in co-pays alone, and then we found another stack of receipts that would add a lot more to it. Right now we have no idea what we are going to do or how. We are at a total loss here and need all the prayers we can get. I take that back- there is NOTHING we can do right now...only God can, so we need your prayers for an insurance intervention!