possibly being hacked

my antivirus informed me the computer's being hacked, but it can't do anything about it. So if it doesn't sound like me, it isn't. I've got to go back everything up the best I can. I'll be back, when, I don't know! Prayers welcome!

Kelsey

"PCS is sad to announce this. We have since December 1st been investigating a report about Kelsey. PCs was fooled on this and it is very hurtful because we feel that it is hardship to families who have suffered loses as well as her artist we was told Kelsey passed and the Mackayla was diagnosed with leukemia. We spoke with Tari sister in law Daela who stated that it was all lies.

We have fully investigated this matter and found that there is no death record with Dallas memorial hospital. There is certain information PCS can obtain due to releases. We have found that Kelsey does have an illness but has not passed away. We have found that Tari suffers from a disorder herself of Bi Polar but this is still one of the hardest things we had to report. PCS feels that this was hurtful to many as well as us due to we had notifications on her caringbridge page as well as her mother attending a memorial that was set up for her. PCS will now be changing are rules and regulations on children coming into our program. It is sad to have to have others suffer because of one bad seed. We also do not take responsibility for Tari actions because we are only reporting what is told to us. Thank you for all your support and PCS is again sorry to be the ones to report this horrible action because no parent should tell their child is dead and hurt ones who care for that child."

I'll be removing the post on Kelsey shortly. I'm just disgusted...

If I gave you a link and told you that you could have fun, learn a variety of things, and help end world hunger at the same time....

Would you click that link???

FreeRice.com- take a quiz on a subject of your choice. Have fun, learn new things...and for each correct answer, rice will be donated to to the United Nations World Food Program. FreeRice has generated enough rice to feed more than two million people since it started in October 2007!

My best level was 30, and by playing I donated 5,ooo grains of rice!

After you play, be sure to add a banner to your page and let me know how you scored!

So.....

will you click that link?

Calling All Prayer Warriors!

Baby Stellan, aka "MckMuffin", aka "MckMiracle", has been taken to the E.R. after a recent illness quickly progressed until he was turning blue.

On Tuesday morning, Dennis Reed was taken to the E.R. by ambulance, bleeding profusely from his mouth, losing five or six large clots, on top of an on-going fever. All the kids pulled together when they heard Christine shout, "Call 911!", and four hours later Dennis was released home. While Dennis was at the hospital, a neighbor came over and cleaned the pools of blood for the family and watched the kids. Dennis was very clingy after coming home, and continued to loose clots from his incision site. On Friday he had his palette checked by the surgeon, who said it was not infected, but put him on antibiotics just in case. They found out that Dennis had only lost half a pound since his surgery. There was an extra flap of tissue, though, that may need to be removed in a future surgery.

On Friday, CDH baby Olivia's sats droped to the 40s and her heart rate went down significantly. She was first extubated and then re-intubated with a larger tube. After that they bagged her which did not work, then moved her back to the oscillatory vent which inflates and holds the lungs open, which did not work either. Then a drainage tube was inserted into her lungs, and they got quite a lot of fluid out. Finally she started to respond, but with her oxygen being so low for so long, it's very likely it caused damage to the brain, but how much they can not yet tell.

Baby Kayleigh, CDH warrior's parents were recently told Kayleigh's time on earth was coming to an end. But Kayleigh decided otherwise. They now have a plan of action, but it's certainly not going to be an easy road, nor one with a guaranteed survival. Please keep this PICU Princess in your prayers!

On the 17th, CDH & Situs Inversus (Heterotaxi) warrior Veiyah had her worst episode yet. The nurse came in to do her blood draw and Veiyah got so upset that her oxygen saturation went down to below 50 (normally for her, should be 70's and up) and her heart rate dropped from 130 bpm to 30 (thirty) bpm. The nurse started to balloon air into her breathing tube, but when her heart continued to slow, chest compressions had to be started as well. A minute later she still wasn't improving, and the nurse called for help, and everyone ran in and attempted to revive her, while her mother yelled for her baby girl to come back, to not leave her, too, like Veiyah's twin sister Aderah did while still in the womb. Finally she calmed down, and her sats rose. Miraculously, just one day later, Veiyah was able to be extubated. And though she was still in the PICU on Christmas, that is fine for Veiyah's family. After all, Veiyah is alive and fighting, and that is the best present they could have asked for.

8 year old Eden Adams has been battling Stage IV Neuroblastoma for four years, and as of right now, it is no longer a matter of how to beat the cancer, it is a matter of keeping her as comfortable as possible, and praying. Praying for Eden, whatever the outcome may be- whether a life saving miracle, whether a peaceful passing...Princess Eden needs all the prayers she could get!

Okay, I'm sure I'm forgetting a few kids, but this should keep you busy for a bit!

~Alex

New Winter Layout is DONE!

How'dya like the new look? The basics were done within and hour, and the extras took 1-2 hours or so. So, for roughly under 3 hours of work, I'm very pleased with the results! The background is free from The Cutest Blog on the Block, the header is by me, and I used quite a few tutorials to add a second sidebar and a lot more, all of which I've linked to somewhere. Please let me know what you think!

I Slept ALL DAY (literally) // The True Meaning of Christmas

I'm not kidding. I went to sleep last night, and woke up a few minutes before 6PM. So, literally, I slept all day. Ah, the joys of an auto-immune disease after Christmas!

After I woke up, I watched Wall.E with my family. No screaming, yelling, fighting, or emotional abuse from my father, either. He got that stuff out of the way yesterday...no later than a minute after we were up.
Nice, huh? But all in all, it was a nice day.

Wall.E- Officially one of my favorite movies. If you haven't seen it yet, I highly recommend you do!

Now my mom, Sam, and my father are watching The Chronicles of Narnia: Prince Caspian. The reason I'm not watching it, is that I'm just too worn out. Yes, after sleeping ALL DAY, two hours sitting in my wheelchair had me worn out. But I don't mind, really. It felt good to sleep, and I'm content watching House with my cat on my lap and typing an update.

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I think this is the first year that I truly understood the meaning of Christmas. GOD, the Creator of the universe, sent His son, a part of Himself, to earth, born of a poor, young virgin, in a place made for animals, to experience pain and suffering, and then died on the cross, for us. And not only did He die physically, but spiritually, too. For three days He suffered the fury of hell, and rose again, to form a New Covenant, that we may have true life! That we may be forgiven of our sins, and be welcomed into Heaven when our mortal bodies die, to live eternally with the One who is God, the one who is true, pure, agape Love, the Great I am...and great He is! And what must we do in return? Nothing, except accept His gift of Love.

Christmas is a celebration of the sending of God's son to earth...the King, born a poor child, in a lowly manger...t0 live and die, for us.

Getting some poetry off my chest

I've had these poems running though my head, and it's time I write them down!

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Baby, hold on to your smile,
I know you're tired
But hold on to your smile
I know it's been awhile
Since things felt okay
And it's hard every day,
But hold on to your smile

'Cause it's no fun being sad,
Not fun being mad,
Even though things are bad,
Hold on to your smile

It hurts to see you hurting

You don't have to be strong
Like you've been all along
It's okay to cry
I bet you've wondered some why's
And I'd be angry, too
If I were you,
But we want you to be happy
We'd do anything
...Oh, baby... please...

Just hold on to your smile

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How can you go along
When they're just hanging on
How can you sit there
Whilst horrors they bare
How can you know
When they've no where to go
And go along
As they try to be strong

How can you do nothing
While the children are suffering?

Note- In the line "When they've nowhere to go" I'm not referring to a physical shelter, but a refuge so to speak, an escape from what they're going through.

Note Note- When writing the first poem, there were two children I had in mind, both fighting cancer, with extremely grim prognoses. They've been so strong through it all, but now, losing the ability to walk, to play, constantly on pain medications making them lethargic, they're having a hard time holding on to their smiles. Every day has become just another day...a repeat of the same emotional pain, and they've reached the stage that they seem to somehow realize that they're not getting better, and they're just so tired of fighting. I don't want to post these children's names here, but please keep them in your prayers...these are children who are normally happy, goofy kids with a love for life, whose spark has left their eyes...please, please pray they can get it back! To be dying is enough without feeling sad, hopeless, and alone. I can email you their web links if you would like, but I just don't feel right putting their names here.

Note Note Note- Yes, I'm aware that I use bold and italics way too much.

I've Been Tagged!

I've been tagged by "Warrior on the Outside, Pirate on the Inside!" aka the update page for Congenital Diaphragmatic Hernia warrior Owain and his lovely mom =)

The Rules:
*Link to the person who tagged you.
*Share 7 random/weird facts about you.
*Tag 7 people at the end of the post, and include links to their blogs.

~I know what I'm getting for Christmas because I ordered my presents! My mom isn't very computer-savvy (if you don't use it ya lose it!) so she let me order the items that had to be ordered online

~I have two dolls and lots of stuffed animals. Hey, they make me happy, so who's to say I'm too old for it! One is an American Girl I got from my grandma, and one is a "Sew Able" doll which I was given by a wonderful lady named Marianne. The dolls head is bald (there are two types of them, prosthetics, and cancer, and I have the cancer one) and I have a wheelchair for her, too.

~I collect Coca-Cola memorabilia and other vintage finds, as well as cool pins

~I love sewing and want to learn to knit

~I really miss my hair, and sometimes still reach my hand up to twirl it, only to find it's not there.

~Sometimes people think I have cancer (between the short-short hair, taking methotrexate, and having to wear germ masks frequently, it happens, and embarrasses me because I have it easy compared to kids with cancer)

~I can't read music whatsoever, but can sound out most songs on the piano and memorize them (right now I'm working on Silent Night, What Child is This?, The Little Drummer Boy, and a few others)

***EDIT***
I just noticed that I forgot to tag 7 people! Duh!
Okay, so I'll tag....hmmm, well, I'm only going to tag one person, but if you'd like to do this, have at it! I tag
Zack Please keep him in your prayers, he's in a lot of pain and they're not sure why.